Modern Myths About Tongue-Tie
The Unnecessary Controversy Continues
Twenty-three years ago, when I was doing my research on tongue-tie’s impact on breastfeeding and developing the Assessment Tool for Lingual Frenulum Function, the most problematic attitude I ever encountered was resistance to the idea that tongue-tie could create a breastfeeding problem. This resistance was purely due to lack of knowledge about the physiology of infant suck. Occasionally back then, I might have met someone whose resistance was ego-driven—the “not invented here” line of thinking— but that was the exception rather than the rule. Then, the challenge for those of us who understood how tongue-tie impacted infant suck was to educate, educate and educate some more.
Today, the controversy over various aspects of the tongue-tie phenomenon are liberally laced with ego-driven resistance. It seems as if the entire world of practitioners has something to say about tongue-tie, regardless of level of expertise on the subject. And now the notions of “lip” and “buccal” tie, and to complicate matters even more, this thing called “tethered oral tissue,” have entered the picture to further confuse parents and practitioners alike. Is this labyrinth of information, misinformation and dis-information helping us to get treatment for truly tongue-tied babies?
A dialectic between smart people who have no vested interest other than to help others remains ever useful. An out-and-out brawl between various factions of people spouting dogma that is liberally littered with poorly informed opinion does not. I am all for helping moms and babies, but I am definitely for helping them using solid evidence, so that they get the right kind of help, at the right time, from the right practitioner.
I vote that we get back to anatomy and physiology, and get back to using the evidence to support what we do as practitioners and as parents faced with making the decision to have surgery performed on our infants. Let’s start with what we know about tongue-tie.
Fact 1: Tongue-tie does exist. It even has its own gene(s) that codes for it.
Fact 2: It manifests with various syndromes, which in and of themselves are relatively rare.
Fact 3: It is hereditary.
Fact 4: It has for a very long time had a clear definition: Tongue mobility restriction due to a tight and/or short lingual frenum.
Fact 5: It is a congenital anomaly. Regardless of whether tongue-tie is genetic or epigenetic, it occurs during development in the embryonic period.
Fact 6: Because tongue-tie, by definition, is impaired tongue mobility due to a congenital anomaly, it can cause deficits in all functions that require optimal tongue mobility, whether that be breastfeeding, bottle-feeding, chewing, protecting the airway, cleaning the teeth, or helping to form speech sounds. The degree to which this happens is somewhat known but more research needs to be done before we have a firm grasp on this. Only then can we fine-tune our treatment approach.
Fact 7: The incidence of tongue-tie was only hypothesized until of late. A study out of Australia has shown that the incidence hovers around 5 percent of all people. More research needs to be done before we know an exact figure. The problem with incidence figures in the past was that no standardized assessment was being used. The study’s author, Dr. Todd, however, used a standardized, evidence-based screening tool for three years in a row in a large sample of infants. He was able to come up with what appears to be a very solid incidence statistic as a result. Please note here that Mother Nature does not create catastrophic increases in incidence of congenital anomalies unless some catastrophic epigenetic influence is at play. To claim that there is a rise in incidence to the tune of 20 to 50 percent is a clear misunderstanding of how epigenetic influences function epidemiologically.
Fact 8: Scissors frenotomy performed by trained practitioners has little to no risk. (No such data exists for laser, electrocautery or scalpel frenectomy.)
Fact 9: Breastfeeding improves post-frenotomy/frenectomy as long as tongue function is normalized as a result. Not all babies will show such improvement. Anecdotally, many babies will need further therapy to restore proper tongue-function post-surgery.
Fact 10: Any connective tissue in the body (frena included) can be tight and impair optimal function. At what point that tightness can so severely impact function that no compensation can override the restriction is an important question to put to the researchers.
Now, why do I bring up Fact 10? Because two interesting theories have emerged in the last 10 years. One theory proposes that the upper lip frenum can cause breastfeeding problems. One case history was published detailing the way in which the upper lip frenum created a problem. Recently, an article fleshing out the theory was published proposing a classification schema to help people determine the presence of a lip frenum that negatively impacts breastfeeding. Unfortunately for the proposer, the classification system proposed did not go through the validation process, so it really cannot yet be said that it accurately identifies the type of upper lip frenum that could cause a breastfeeding problem.
Let’s look more closely at the assertion that a tight, prominent upper lip frenum causes breastfeeding problems. We can use anatomy, physiology and development as our guide. First: The upper gumline changes with growth. A frenum that appears to be restricted in early infancy may substantially change as the baby grows. Second: Breastfeeding does not require a lip flange, merely lip eversion. Third: The assertion that dental caries are caused by an upper lip tie begs to be proven. Breastmilk does not pool in the mouth. The position of the nipple in the mouth and the manner in which that milk is moved into the pharynx for the swallow won’t allow it. Both the peristaltic action of the tongue and the pressure differential created by tongue movements quickly push/pull the milk to its ultimate destination.
Fourth: The lips follow the tongue; if the tongue retracts, the lips move inward toward the gumline and when the tongue everts, the lips also evert. This is a developmental reflex that remains active throughout life. Anyone who has ever French-kissed can assert the truth of this. Tongue position plays such a keen role in the positioning of the lips that many types of acquired structural issues, like torticollis, can cause the tongue to retract thereby pulling in the lips. In my experience, this can be mistaken for what the theorists call an upper lip tie.
In my clinic this past year I saw such a baby. She had been misdiagnosed with both a tongue-tie and an upper lip tie. She actually had low cheek tone and overactive, tight lip tone. One of my colleagues performed some very effective bodywork to bring down the lip tone and bring up the cheek tone. It took her three minutes to rectify the problem at no cost to the mother and the baby was saved from unnecessary surgery.
That leads me to my next point. Without a valid definition of upper lip tie (one based on solid facts about how the labial frenum impairs lip mobility in the specific manner that actually impairs breastfeeding), we are hard-pressed to be able to assess it properly. The exact characteristics of a phenomenon must first be established before assessment tools can be generated to assist the clinician in proper diagnosis. No such work has yet been done.